Sunday, October 6, 2013
Attitude Change
This has been such an amazing wonderful week. And it isn't cuz I feel better. Actually I have been sick and my husband thinks I have walking pneumonia! : ) I smile cuz it doesn't matter! What matters is my attitude change. Every morning I have woken up with such joy and excitement for my day, even though I can't breathe super great. God has been so alive and drawing me to Him that how I "feel" is so miner. Peace has returned to my home and I just want to praise God all day long for His work in me. I needed severe correction and that I got! But then I was showered in mercy and grace and love....what a wonderful God we serve!
Wednesday, October 2, 2013
More than MS
I am glad I got a comment that reminded me that I am more than MS. It doesn't have to consume my life, my talk, or even my blog! : ) I will use this blog to update any medical things going on in our family due to MS but as this flare-up settles down I am wanting to continue this blog for more.....not sure for what more yet! : )
That being said, I do have some "medical" things to update. The spinal fluid did come back with the MS proteins, so there is no more waiting to make sure I have MS. It is official! Because it is official I have to start MS medication. After researching them....considering their effectiveness, years of research, amount of damage done to liver/kidneys, cost, side effects, etc., we have narrowed it down to two. One is a daily shot injection called Copaxone. It has been around for over 20 yrs, no damage to liver/kidneys, and has mild flu like side effects. The second is a monthly IV. As awful as this sounds I can not remember the name...it starts with a D. : ) I would go in once a month for 2 hrs and the first hour is for the IV, and then they have to monitor you an hour afterwards because I believe you have some flu like side effects as well. Now the IV is also twice as effective as the Copaxone, which is another reason I like it....plus no daily needles for me! : ) Here is the hangup with the IV. 60% of us will contract a virus in our lifetime called the JC virus. It just feels like you have a cold, and then the virus lies dormant in your brain. The medicine in the IV actually causes that virus to "awaken" and that cause serious brain infections and possible death. So I have taken a blood test to see if I carry this virus. If I am positive I have will remain on the Copaxone. If I am negative we will go through the process of starting the IV treatment. This may take a month or so, so either way as soon as my Copaxone comes in the mail I will begin my daily shots. I will then have blood tests done every 6 months to check and see if I have the JC virus, since I can still get it in my lifetime. Sorry if that was confusing! : )
I want to also add this amazing song to this post. A sweet friend blessed me with this and I think it is amazing! : ) I want my trust to know no borders!
That being said, I do have some "medical" things to update. The spinal fluid did come back with the MS proteins, so there is no more waiting to make sure I have MS. It is official! Because it is official I have to start MS medication. After researching them....considering their effectiveness, years of research, amount of damage done to liver/kidneys, cost, side effects, etc., we have narrowed it down to two. One is a daily shot injection called Copaxone. It has been around for over 20 yrs, no damage to liver/kidneys, and has mild flu like side effects. The second is a monthly IV. As awful as this sounds I can not remember the name...it starts with a D. : ) I would go in once a month for 2 hrs and the first hour is for the IV, and then they have to monitor you an hour afterwards because I believe you have some flu like side effects as well. Now the IV is also twice as effective as the Copaxone, which is another reason I like it....plus no daily needles for me! : ) Here is the hangup with the IV. 60% of us will contract a virus in our lifetime called the JC virus. It just feels like you have a cold, and then the virus lies dormant in your brain. The medicine in the IV actually causes that virus to "awaken" and that cause serious brain infections and possible death. So I have taken a blood test to see if I carry this virus. If I am positive I have will remain on the Copaxone. If I am negative we will go through the process of starting the IV treatment. This may take a month or so, so either way as soon as my Copaxone comes in the mail I will begin my daily shots. I will then have blood tests done every 6 months to check and see if I have the JC virus, since I can still get it in my lifetime. Sorry if that was confusing! : )
I want to also add this amazing song to this post. A sweet friend blessed me with this and I think it is amazing! : ) I want my trust to know no borders!
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