Monday, June 9, 2014

Getting focused

I am reading a book right now called "The Wahls Protocol."  I have mentioned Dr. Wahls many times and if you haven't heard of her I highly recommend you do.  She is very knowledgeable and encouraging.  In this book she asks that you journal your recovery (from MS or any disease) and use it as a reminder of where you are right now (symptoms, pain, etc) so that you can see how far you have come.  I thought my blog is the perfect place for that!  I want to use this to remind myself of God's goodness and His healing in my life.  So I do hope as I learn and as I heal it will be an encouragement and a challenge to everyone else.  : )

To get started I need to list my current symptoms and just where I am right now:

We moved to Texas at the end of April and I think that stress had a major impact on my health.  I am currently on two medications for pain but will be off one of them completely in two weeks.  My pain in my feet has increased (only slightly) since and that is encouraging to me.  I have switched from Tysabri to Techfidera.  I have had side effects from Techfidera that include nausea and flushing.  The flushing feels like someone has rubbed insulation all over my body, so it burns and stings.  This is happening mostly in my face and sometimes in my arms and legs.  This happens on and off throughout the day and lasts about an hour.  Because of the stress of the move etc, my lesion on my spinal cord that effected my hands flared up again.  My hands are in pain most of the day, making it hard to type or do my daughters' hair or even wring out a rag.  They burn and feel weak and sometimes go numb.  Because of this flare up I was given an oral steroid instead of the steroid infusions to see if it would work better.  The pills come in 4mg tablets but I had to take 80mg twice a day for three that was 20 pills each time!  The side effects were nasty.  It felt like someone was punching me in the back right where my kidneys were for those three days.  I couldn't sleep and I spent one night with more nausea than I had ever felt before in my life.  Sorry for how gross this is going to sound...BUT it also caused me to have some vaginal bleeding (mostly blood clots) for those three days.  I am also weak and shaky but not sure what is causing that.  This has all been happening over the past week.  I am praising God that I was able to sleep the past two nights!  I also feel bruised around my neck and shoulders.  Ok, there it is!!!  Believe me when I say this is NOT complaining or whining....I need to list my symptoms as I get started so that I can remember how well I am going to be doing in the future!  : )

I KNOW without a doubt God is using this for good in my life.  He can and will heal me in His timing and use this time in amazing ways for my children.  I trust in His goodness and His wisdom.  If he has allowed this in my life then I will praise Him for it and look with great expectations on what is to come.  I pray for all those that are hurting and read this blog that you too will know God's love and provision and protection.  "Come to me, all you who are weary and burdened, and I will give your rest."  Matthew 11:28

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